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Topic: Which Thyroid Meds work for you?
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Shebear

4/6/2018 3:55:10 PM
Member since:
Aug 2013
Total posts:493
Which Thyroid Meds work for you?

Hi Just wondering which thyroid meds do and dont/didnt work for you and if you noticed side effects or benefits of any? Espc. those with Hashimotos?  
Are you labs (blood work of your TSH, Free T4, Free T3 and rT3) ever always in the normal range or do they go up/down each time?  
Did you find a difference in Natural Dessicated Thryoid meds vs synthetic like Synthroid, Levothyroxine, Cytomel T3 etc?

 
 
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happynana

4/6/2018 4:54:19 PM
Member since:
Feb 2012
Total posts:164
Re:

Are you still having issues with your thyroid..I use synthroid and it works for me..it seems to be keeping myou thyroid levels ok ...been on it for 17 years..

Shebear

4/6/2018 5:10:25 PM
Member since:
Aug 2013
Total posts:493
yup

  
happynana said "Are you still having issues with your thyroid..I use synthroid and it works for me..it seems to be keeping myou thyroid levels ok ...been on it for 17 years.. "

still am.....Thats good synthroid works for you....and glad your levels are ok...what difference did you notice with taking it? Sometimes peoples labs can show normal range but they still feel crappy....Are you Hashi' or just hypothyroid? My gran was hypo didnt gain a ounce and didnt need meds lol

happynana

4/6/2018 5:47:41 PM
Member since:
Feb 2012
Total posts:164
Re:

  
Shebear said "
  
happynana said "Are you still having issues with your thyroid..I use synthroid and it works for me..it seems to be keeping myou thyroid levels ok ...been on it for 17 years.. "

still am.....Thats good synthroid works for you....and glad your levels are ok...what difference did you notice with taking it? Sometimes peoples labs can show normal range but they still feel crappy....Are you Hashi' or just hypothyroid? My gran was hypo didnt gain a ounce and didnt need meds lol "

With taking it I am no longer tired and low energy..ya I have heard that people feel that way..When I was diagnosed the doc checked my thyroid antibodies and they were up there so I was diagnosed with hashimoto disease. My antibodies will just keep increasing and 3ventually my thyroid will no longer function.. my weight is OK if I watch what I eat...ha

michelle

4/6/2018 8:19:43 PM
Member since:
Nov 2005
Total posts:2578
Dessicated Thyroid

I did the Synthroid thing (gave it my best shot with a year or more), then I did the long dance with Synthroid plus Cytomel, which was a major improvement with the addition of T3.  
 
I have now been on prescribed Dessicated Thyroid meds for at least 8 years and have never felt better. It was a struggle getting it prescribed, but well worth it for me. It may not be for everyone.  
 
Feel free to PM me. I have Hashi's.

givemeabreak

4/6/2018 8:30:26 PM
Member since:
Mar 2011
Total posts:116
synthroid

my thyroid is all gone as a result of finding some cancer cells in the one half that was removed. I am on synthroid (.2mg) only and it's working for me. From what some of you are saying, I guess I'm lucky.

Shebear

4/6/2018 9:02:37 PM
Member since:
Aug 2013
Total posts:493
NDThryoid

  
michelle said "I did the Synthroid thing (gave it my best shot with a year or more), then I did the long dance with Synthroid plus Cytomel, which was a major improvement with the addition of T3.  
 
I have now been on prescribed Dessicated Thyroid meds for at least 8 years and have never felt better. It was a struggle getting it prescribed, but well worth it for me. It may not be for everyone.  
 
Feel free to PM me. I have Hashi's. "

that you have, you dont have to say names on here unless you want to but who prescribed it for you? I tried cytomel T3 just 25mcg and stopped losing my hair stopped naps for 3 hours daily and can go for walks every other day and my nodules are gone. Doc wont prescribe it for me or NDT wants me on synthroid as my TSH was high but that can be up/down with Hashi.. Also she told me I can find another doc if I want! So I want to see what has worked and in what ways (symptoms gone/reactions etc) for others to get an idea what to do.

michelle

4/6/2018 9:37:07 PM
Member since:
Nov 2005
Total posts:2578
Thyroid

  
Shebear said "
  
michelle said "I did the Synthroid thing (gave it my best shot with a year or more), then I did the long dance with Synthroid plus Cytomel, which was a major improvement with the addition of T3.  
 
I have now been on prescribed Dessicated Thyroid meds for at least 8 years and have never felt better. It was a struggle getting it prescribed, but well worth it for me. It may not be for everyone.  
 
Feel free to PM me. I have Hashi's. "

that you have, you dont have to say names on here unless you want to but who prescribed it for you? I tried cytomel T3 just 25mcg and stopped losing my hair stopped naps for 3 hours daily and can go for walks every other day and my nodules are gone. Doc wont prescribe it for me or NDT wants me on synthroid as my TSH was high but that can be up/down with Hashi.. Also she told me I can find another doc if I want! So I want to see what has worked and in what ways (symptoms gone/reactions etc) for others to get an idea what to do. "

Feel free to PM me.  
 
It has been a bit of a struggle and each and every person is different with their thyroid testing, ranges, meds, etc.  
 
Dessicated thyroid RX has been really good for me, personally. It may not work for all, but I am happy with it.

Shebear

4/6/2018 10:04:00 PM
Member since:
Aug 2013
Total posts:493
hi

  
michelle said "
  
Shebear said "
  
michelle said "I did the Synthroid thing (gave it my best shot with a year or more), then I did the long dance with Synthroid plus Cytomel, which was a major improvement with the addition of T3.  
 
I have now been on prescribed Dessicated Thyroid meds for at least 8 years and have never felt better. It was a struggle getting it prescribed, but well worth it for me. It may not be for everyone.  
 
Feel free to PM me. I have Hashi's. "

that you have, you dont have to say names on here unless you want to but who prescribed it for you? I tried cytomel T3 just 25mcg and stopped losing my hair stopped naps for 3 hours daily and can go for walks every other day and my nodules are gone. Doc wont prescribe it for me or NDT wants me on synthroid as my TSH was high but that can be up/down with Hashi.. Also she told me I can find another doc if I want! So I want to see what has worked and in what ways (symptoms gone/reactions etc) for others to get an idea what to do. "

Feel free to PM me.  
 
It has been a bit of a struggle and each and every person is different with their thyroid testing, ranges, meds, etc.  
 
Dessicated thyroid RX has been really good for me, personally. It may not work for all, but I am happy with it. "

sent you a pm

happynana

4/7/2018 12:00:37 AM
Member since:
Feb 2012
Total posts:164
Re:

  
givemeabreak said "my thyroid is all gone as a result of finding some cancer cells in the one half that was removed. I am on synthroid (.2mg) only and it's working for me. From what some of you are saying, I guess I'm lucky. "

I am only on .25 MG...it's all I need to help me

Shebear

4/7/2018 12:32:22 PM
Member since:
Aug 2013
Total posts:493
Geesh

  
happynana said "
  
givemeabreak said "my thyroid is all gone as a result of finding some cancer cells in the one half that was removed. I am on synthroid (.2mg) only and it's working for me. From what some of you are saying, I guess I'm lucky. "

I am only on .25 MG...it's all I need to help me "

My doc wanted me on one pill of 0.2mg (says Levothyroxine na/synthroid/pink round synthroid 200) and synthroid 0.075mg levothyroxine na/violet/rnd/synthroid 75. If its just synthroid why does it have both names? I thought they were two seperate T4 meds? I also read synthroid causes osteoarthritis and brittle bones....I already have osteo in my spine.

givemeabreak

4/7/2018 12:55:12 PM
Member since:
Mar 2011
Total posts:116
my label says:

  
Shebear said "
  
happynana said "
  
givemeabreak said "my thyroid is all gone as a result of finding some cancer cells in the one half that was removed. I am on synthroid (.2mg) only and it's working for me. From what some of you are saying, I guess I'm lucky. "

I am only on .25 MG...it's all I need to help me "

My doc wanted me on one pill of 0.2mg (says Levothyroxine na/synthroid/pink round synthroid 200) and synthroid 0.075mg levothyroxine na/violet/rnd/synthroid 75. If its just synthroid why does it have both names? I thought they were two seperate T4 meds? I also read synthroid causes osteoarthritis and brittle bones....I already have osteo in my spine. "

levothyroxine na 0.2mg synthroid 0.2mg pink/rnd/synthroid (200)  
 
I had two thyroid operations and had the "iodine burn" or whaterever it is, to remove almost all remnants of thyroid material, so I rely on the synthroid medication completely.

Shebear

4/7/2018 1:12:00 PM
Member since:
Aug 2013
Total posts:493
sorry

  
givemeabreak said "
  
Shebear said "
  
happynana said "
  
givemeabreak said "my thyroid is all gone as a result of finding some cancer cells in the one half that was removed. I am on synthroid (.2mg) only and it's working for me. From what some of you are saying, I guess I'm lucky. "

I am only on .25 MG...it's all I need to help me "

My doc wanted me on one pill of 0.2mg (says Levothyroxine na/synthroid/pink round synthroid 200) and synthroid 0.075mg levothyroxine na/violet/rnd/synthroid 75. If its just synthroid why does it have both names? I thought they were two seperate T4 meds? I also read synthroid causes osteoarthritis and brittle bones....I already have osteo in my spine. "

levothyroxine na 0.2mg synthroid 0.2mg pink/rnd/synthroid (200)  
 
I had two thyroid operations and had the "iodine burn" or whaterever it is, to remove almost all remnants of thyroid material, so I rely on the synthroid medication completely. "

you had to go through that. Did you ever try natural dessicated thyroid meds or the new tirosint liquid t4? Or just the synthroid? How are you feeling?

curlysister

4/7/2018 2:28:01 PM
Member since:
Sep 2009
Total posts:2295
hmmm

Eltroxin, Synthroid, and Tirosint are brand names, Levothyroxine is the generic drug name for T4. The different brands come in different doses, so if you need a dose that isn't made, you might need to take two separate tabs (ie - in the above example of 0.2 + 0.075mg).

givemeabreak

4/7/2018 3:51:38 PM
Member since:
Mar 2011
Total posts:116
To Shebear

Sorry you had to go through that. Did you ever try natural dessicated thyroid meds or the new tirosint liquid t4? Or just the synthroid? How are you feeling?  
 
Never tried anything different although I don't recall if the original doctor made adjustments to the dose at the beginning.  
 
I'm feeling fine and I have quartely check-ups with lots of blood work and all seems to be in spec

Opustwo

4/7/2018 4:27:49 PM
Member since:
Jul 2016
Total posts:117
Doctor?

I've been on thyroid meds for years and currently synthroid - I wake up tired, have next to no energy and am tired of being tired but Doctor says my labs are fine! Just curious who you folks doctor with and I wonder if I change. I would love to get my life back

givemeabreak

4/7/2018 8:01:03 PM
Member since:
Mar 2011
Total posts:116
doctors

  
Opustwo said "I've been on thyroid meds for years and currently synthroid - I wake up tired, have next to no energy and am tired of being tired but Doctor says my labs are fine! Just curious who you folks doctor with and I wonder if I change. I would love to get my life back "

Opustwo - I sent you a private message through Brandon.ca regarding my doctors.

JacqPDJ

4/7/2018 8:50:50 PM
Member since:
Jan 2015
Total posts:119
tirosint

Is it available in Canada? Anyone using it?

Shebear

4/7/2018 9:42:12 PM
Member since:
Aug 2013
Total posts:493
hi

  
givemeabreak said "Sorry you had to go through that. Did you ever try natural dessicated thyroid meds or the new tirosint liquid t4? Or just the synthroid? How are you feeling?  
 
Never tried anything different although I don't recall if the original doctor made adjustments to the dose at the beginning.  
 
I'm feeling fine and I have quartely check-ups with lots of blood work and all seems to be in spec "

I've tried T4 only in the past didnt do anything and I prefered NDT, and tried Cytomel T3 only for 2 months but tested only not at full month and took med that day of testing so my T3 was higher T4 lower and TSH high, but stopped losing hair, can go for walks almost daily (if I get too drained I use a cart), dont nap 3 hours daily (still odd days have to) and try push myself to do 2 flights of stairs all on half my lung capacity, asthma and weight lol When docs tell you eat less and exercise more ...uhhh duh lol But when you are burnt out physically mentally and yes I know the weight doesnt help with low lung capacity or walking but when you are that drained and trying and avoiding certain foods and eat cleaner it doesnt always work. And meno was a 'instant' 40lbs lol Some doc's dont get it that we arent stupid just burnt out espc when autoimmune attacking. So trying to find the right meds to help with everything else one would be trying is the struggle. I miss being active and healthy and fit and walk freely and my body telling me to blow it out my shorts lol Docs wont prescribe T3 even though symptoms were improving despite lab ranges not 'normal' so had to get it elsewhere. Labs when they show 'normal' and you still feel like poo and you're still losing hair, cold etc some docs dont listen they just see 'normal' results. Would be nice to get this in remission somehow. Have seriously considered water fasting.

Opustwo

4/8/2018 8:31:56 AM
Member since:
Jul 2016
Total posts:117
Shebear

Your story sounds so much like me!Although I haven't tried NDT. Here's hoping we can find relief!

happynana

4/8/2018 9:58:34 AM
Member since:
Feb 2012
Total posts:164
Re:

  
Shebear said "
  
givemeabreak said "Sorry you had to go through that. Did you ever try natural dessicated thyroid meds or the new tirosint liquid t4? Or just the synthroid? How are you feeling?  
 
Never tried anything different although I don't recall if the original doctor made adjustments to the dose at the beginning.  
 
I'm feeling fine and I have quartely check-ups with lots of blood work and all seems to be in spec "

I've tried T4 only in the past didnt do anything and I prefered NDT, and tried Cytomel T3 only for 2 months but tested only not at full month and took med that day of testing so my T3 was higher T4 lower and TSH high, but stopped losing hair, can go for walks almost daily (if I get too drained I use a cart), dont nap 3 hours daily (still odd days have to) and try push myself to do 2 flights of stairs all on half my lung capacity, asthma and weight lol When docs tell you eat less and exercise more ...uhhh duh lol But when you are burnt out physically mentally and yes I know the weight doesnt help with low lung capacity or walking but when you are that drained and trying and avoiding certain foods and eat cleaner it doesnt always work. And meno was a 'instant' 40lbs lol Some doc's dont get it that we arent stupid just burnt out espc when autoimmune attacking. So trying to find the right meds to help with everything else one would be trying is the struggle. I miss being active and healthy and fit and walk freely and my body telling me to blow it out my shorts lol Docs wont prescribe T3 even though symptoms were improving despite lab ranges not 'normal' so had to get it elsewhere. Labs when they show 'normal' and you still feel like poo and you're still losing hair, cold etc some docs dont listen they just see 'normal' results. Would be nice to get this in remission somehow. Have seriously considered water fasting. "

Have you asked for a referral to an endocrinologist...worth a try...some doctors don't total understand thyroid issues...

Flutterby

4/8/2018 10:34:08 AM
Member since:
Sep 2007
Total posts:1213

Happynana, in my experience, endocrinologists don''t always tell you the truth either and love to push synthroid too. Synthroid has THE WORST track record as far as recalls. I refused to put a product like that into my body. You are best off seeking alternatives. They are out there and I believe they work.  
 
Have you looked into adaptogenic herbals (ashwaghanda, rhodiola)?  
 
NDT is better than synthetic. It has ingredients you can understand, less mystery fillers and works better because it is more complete. A tip if you use it, dissolve it under your tongue. Then you can take it and go. It bypasses your digestive system and is absorbed into your bloodstream.  
 
I found that Thyroset worked well too for me & someone else I know. It had ashwaghanda in it as part of its formula.  
 
You might also want to read up on the HPA/HPT Axis. The thyroid is only a small part of a system that needs to work in sync. In addition to the Axis, your liver and blood circulation needs to be in great working order for anything to be most effective.  
 
Get informed by reading. Do your research!  
 
Edited by Flutterby, 2018-04-08 10:39:46

John01

4/8/2018 11:24:26 AM
Member since:
Dec 2016
Total posts:58
Thyroid Issues

Hello,I have a pituitary tumor which is a master gland in the body,it effects all my hormone levels,I would suggest asking your Doctor to test for Cortisol levels as this hormone affects your adrenal glands which can cause fatigue and that sluggish feeling,I was actually referred to a endocrinologist in Winnipeg who diagnosed the problem,I will be on Synthroid,Cortisol and Testosterone for the rest of my life,  
was doing blood testing 4 times a year and then down to 2 times a year and now once a year as we have stabilized my hormones for now.

Shebear

4/8/2018 2:24:47 PM
Member since:
Aug 2013
Total posts:493
I

  
Abracadabra said "Is it available in Canada? Anyone using it? "

dont know if it is available, it's supposed to be clean no fillers I think....and I dont know much of online pharmacy companies in Canada other than the couple I saw are based out of BC.

Shebear

4/8/2018 2:27:42 PM
Member since:
Aug 2013
Total posts:493
hi

  
Opustwo said "Your story sounds so much like me!Although I haven't tried NDT. Here's hoping we can find relief! "

I hope so because Im so tired of feeling like this lol Short energy to go for walks and do daily things have to push and boy does your body know when you get home lol "couch! now!" lol

Shebear

4/8/2018 2:30:19 PM
Member since:
Aug 2013
Total posts:493
happynana

"Have you asked for a referral to an endocrinologist...worth a try...some doctors don't total understand thyroid issues..."  
 
Yes I've seen the thyroid doc here in town, she is against NDT and won't budge on that and pushes synthetics. Not to confuse her with the parathyroid doc in brandon clinic who is a awesome lady.

Shebear

4/8/2018 2:32:46 PM
Member since:
Aug 2013
Total posts:493
She

  
Flutterby said "Happynana, in my experience, endocrinologists don''t always tell you the truth either and love to push synthroid too. Synthroid has THE WORST track record as far as recalls. I refused to put a product like that into my body. You are best off seeking alternatives. They are out there and I believe they work.  
 
Have you looked into adaptogenic herbals (ashwaghanda, rhodiola)?  
 
NDT is better than synthetic. It has ingredients you can understand, less mystery fillers and works better because it is more complete. A tip if you use it, dissolve it under your tongue. Then you can take it and go. It bypasses your digestive system and is absorbed into your bloodstream.  
 
I found that Thyroset worked well too for me & someone else I know. It had ashwaghanda in it as part of its formula.  
 
You might also want to read up on the HPA/HPT Axis. The thyroid is only a small part of a system that needs to work in sync. In addition to the Axis, your liver and blood circulation needs to be in great working order for anything to be most effective.  
 
Get informed by reading. Do your research!  
 
Edited by Flutterby, 2018-04-08 10:39:46"

is right and good info, thank you for posting  
Would you mind posting the link to the Axis thing for others to look at? So they get the right info....

Shebear

4/8/2018 2:40:06 PM
Member since:
Aug 2013
Total posts:493
Im

  
John01 said "Hello,I have a pituitary tumor which is a master gland in the body,it effects all my hormone levels,I would suggest asking your Doctor to test for Cortisol levels as this hormone affects your adrenal glands which can cause fatigue and that sluggish feeling,I was actually referred to a endocrinologist in Winnipeg who diagnosed the problem,I will be on Synthroid,Cortisol and Testosterone for the rest of my life,  
was doing blood testing 4 times a year and then down to 2 times a year and now once a year as we have stabilized my hormones for now. "

Sorry you have the tumor. I've often wondered if there are things not clicking right in those parts of the brain that send signals or dont send etc. Are you on the meds because your pituitary gland isnt functioning proper now? Or are they thinking it will help slow the tumor? I've lost count how many times I was sent for blood work for my thryoid levels...I'm happy that you've stabalized your hormones, and at a loss how to try and comfort you.

John01

4/8/2018 6:38:47 PM
Member since:
Dec 2016
Total posts:58
No need for Comfort

But Thank you.  
The gland was damaged and no longer functions properly,I am howerver able to function and lead a productive life and hold down a demanding job,besides the regular blood testing I also go for regular MRI's to check on the size of tumor and also do vision screening(specialized tests)to ensure it is not effecting my vision,only thing I really have to watch for is weight gain caused by the cortisol .

Shebear

4/8/2018 9:27:59 PM
Member since:
Aug 2013
Total posts:493
hi

  
John01 said "But Thank you.  
The gland was damaged and no longer functions properly,I am howerver able to function and lead a productive life and hold down a demanding job,besides the regular blood testing I also go for regular MRI's to check on the size of tumor and also do vision screening(specialized tests)to ensure it is not effecting my vision,only thing I really have to watch for is weight gain caused by the cortisol . "

You're welcome lol  
Can I ask what were your symptoms that made you wonder what was going on?

 
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