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Discussion Groups: Health and Wellness


Topic: Meniere's disease
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thecdnmole

4/21/2013 4:47:46 PM
Member since:
Aug 2009
Total posts:649
Meniere's disease

I am curious if there are others out there that have this and what you found to work to reduce or prevent attacks? I had an attack on Wednesday and am taking betahistine pills, but since have had two more attacks. I have read that salt, caffeine and alcohol are the main triggers, something I have reduced earlier just for better health. Some websites suggest anything could trigger attacks, such as deoderant for example. Just curious what others have experienced and found to work! Thanks!

 
 
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sharon kucher

4/21/2013 5:00:53 PM
Member since:
Aug 2009
Total posts:1500
ear inbalance

My hubby has had this for a few years. He has seen a hearing specialist in Winnipeg, and has had a few hearing tests.  
Yes he does have hearing loss. The results - learn to live with it. It may heal itself someday!  
 
He has had quite a few attacks. He has not pined down anything really that triggers attacks. He drinks a lot of coffee. Put that does not affect him.  
 
If he is in a very noisy place then his head rings in pain. Mostly when this happens if he can lays down on the affected side then he usually can sleep it off and not get to the upchucking stage.  
 
I believe he has the same prescription as you.

thecdnmole

4/21/2013 6:07:51 PM
Member since:
Aug 2009
Total posts:649
Sharon

Thanks for the reply. Yes, with the tinnitus, it can be hard to hear and understand what people are saying when in large crowds and all the noise.

crunchy1885

4/24/2013 8:12:36 AM
Member since:
Jul 2009
Total posts:692
PM

I have sent you a PM

thecdnmole

4/24/2013 8:36:36 AM
Member since:
Aug 2009
Total posts:649
Undelivered?

  
lovemypup said "I have sent you a PM "

Must have sent by "snail mail" is I did not receive it

crunchy1885

4/24/2013 9:24:30 AM
Member since:
Jul 2009
Total posts:692
darn

I'm not sure why it didn't go. Don't take this disease lightly. A friend had (has) it and needed 18 months off work, injections and is now deaf in one ear. Had to relearn how to walk. Specialists are in Winnipeg who do the injections. Apparently they hurt but now my friend got his license back and is allowed to drive again. This has been ongoing for 5 years!

alogal

4/24/2013 10:41:08 AM
Member since:
Dec 2009
Total posts:144
...

My husband has suffered from Meniere's for well over 10 years. He has learned from trial and error what tends to bring on one of his 'spells' and thankfully has reduced them to only one every 6 months to a year. He used to be extremely sensitive to salt, caffeine, cigarette smoke, and lack of sleep. He started getting plenty of rest, eliminated the other triggers from his diet and environment, and was on a daily prescription for a betahistine. After a few years he was able to only take the betahistine pills when he felt a spell coming on and has been able to slowly tolerate more salt in his diet and is able to drink coffee. If he has a spell now it is usually caused by a combination of exhaustion, too much caffeine/salt/sugar, or being around too much smoke. He also has not drank any alcohol for several years which definitly seems to have helped.  
 
Unfortunately each spell also reduced his hearing and he is now extremely hard of hearing. He did go to a specialist before I met him and they advised that if he underwent surgery to 'kill' (for lack of a better word) his one ear it would eliminate his problems with the disease. Fortunately the control of his triggers has helped enough for this not to be necessary. I'm sorry that I can't remember more details of what the specialist had told him or where he went to see this specialist.  
 
I wish you all the best in being able to manage your attacks. I try not to remember how terrifying my husband's sudden blackouts were or how sick he was after. If my husband has been able to find a way to control his attacks I can definitely tell you that there is hope.

thecdnmole

4/26/2013 9:07:33 PM
Member since:
Aug 2009
Total posts:649
Thanks!

Thanks for the responses thus far! As strange as it sounds, but I never use deoderant, but the week of my attack was when I used it the most. I did not use that this week and had no feeling of an attack at all. But as people say, one never really knows when it will happen. I was also drinking more coffee lately, and went back to just decaf or water which might have helped? I did read though that the decaf process is just as unhealthy as regular coffee. I keep thinking there are worse things a person can have than this

alogal

5/31/2013 1:52:34 PM
Member since:
Dec 2009
Total posts:144
...

I forgot to mention that dehydration is also a major trigger for my husband. He drinks plenty of water to try to make sure he's hydrated and will drink sport drinks if he's doing anything that causes him to sweat a lot. Hopefully this also helps you!

SJK

5/31/2013 2:26:41 PM
Member since:
Jul 2006
Total posts:4301
Wondering if anyone

  
alogal said "I forgot to mention that dehydration is also a major trigger for my husband. He drinks plenty of water to try to make sure he's hydrated and will drink sport drinks if he's doing anything that causes him to sweat a lot. Hopefully this also helps you! "

has tried acupuncture for this?


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