Joined: This month
Posts: 193
Iton
5/21/2019 at 9:07 AM
I have a friend whose husband has this problem (hemochromatosis)-they are in Ohio and for whatever reason his doctors never diagnosed the problem until he had major liver damage. Initially they said he had RA and tried to treat him for that. It did not work. By the time he was diagnosed he was very, very sick and his liver was shutting dow. He ended up having a transplant. I am not sure why people would look at you different because of the condition? I know another person here with the condition and he does not look different from anyone else, though his is well managed and he is suffering no ill effects from it.